Sat July 26th, 2008

IMPORTANT NEWS!!!!!!I know it has been a very long time since I have sent an update but there has been alot of things going on lately with Nathens emotions and his overall well being. Here it is after 1am and I am just now getting a chance to send this update. Nathe has not been going to sleep til after midnight almost every night and even then I am up most the night cleaning his pants and the bed several times due to his diarhea. Not to mention he has had 2 rounds of 3f8's and it flat out drains me physically and emotionally to watch him go through that. This past round Nathen stopped breathing the first day and became limber as a rag in my arms and the Nurses and Doctors grabbed him out of my arms and put him on the bed with Oxygen and the "BAG", the thing they use to do CPR with. They had to give him NARCAN... basicly to reverse all medications in his body. I was such a horrible mess and did not sleep hardly at all the whole week in fear of the next days treatment. Now that we have finished that round of 3F8's we started another kind of medicine which is supposed to help keep them from Relapsing. It is called Accutane and it is used in high doses to keep the cancer from coming back. The doctor mentioned that the medicine has been known to make the older kids very suicidal and very depressed, moody. I was thinking GREAT. so now Nathen had a round of 3f8's, ended on Friday, then that following Monday he started Radiation which was 7 days long twice a day, once in the morning and once in the afternoon(meaning Nathen could not eat or drink after midnight until about 4pm in the afternoon every day) then that ended on Wednesday and on Thursday he had a surgery to fix his mediport(where he gets his meds through) which we found out during radiation that the tub that goes from the port and into the heart is supposed to only be in the middle of the heart bu Nathens was at the very bottom laying against the heart wall so everytime they would draw blood for his blood work it would stick to his heart wall from the suction, that surgery was on a Thursday and then on the following Monday he started 3f8's again, then as soon as he finished that he had to start the accutane and also had another bone marrow done. The Accutane has made him cry non stop for hours at a time, and very moody, he wont let anyone do anything for him but me and most of the time he wont even let me do anything.he is just flat out MISERABLE. did I mention all his hair fell out again from the radiation? It ok though it will grow back again. Since Nathen's last round of 3f8's he has lost 9lbs which is alot for his tiny little body. I cry every time I change him, it kills me to see him so thin again. They also started him on an appetite stimulant the same day he started the accutane and he eats 24/7 now, NO LIE 24/7. he wakes up and first thing he says is bite, and he wakes up in the middle of the night crying to eat. But because of the diarhea he is still losing and not gaining. I am so worried about him. he went from 36.25lbs to 27lbs. I am hoping that the diarhea(no clue what is causing it since he has so may digestive issues and also had surgery and radiation to the tummy)will stop very soon and Nathen will be my plump happy little man again. HERE IS THE VERY IMPORTANT PART!!!!!!!!!! Today was Friday July 25th, just 5 days over a year that we found out that Nathen had cancer, and they told us today that his last bone marrow biopsy they did last Thursday was POSITIVE for Neuroblastoma. PLEASE PRAY, we wont know more til at least Wenesday of Next week, which is when they will be able to do more test. I am so scared and have been crying all day and it took me back to when I first heard the words NATHEN HAS CANCER a year ago. Please please pray for my baby and pray that maybe this is just cells that were still left and not regrowth since if it is regrowth it will be worse off than if it is just cells that were still lingering in his bone marrow. If it is regrowth it most likely comes back much stronger and harder to get rid of than the oringional disease since it will now have built up immunity to the chemos. The test next week will be to check for Tumors and also to check to see if it is other places than just in the bone marrow. Please pray for my baby and pray for our family to be strong through this tough time. THANK YOU....