Tues.. April, 8, 2008

Nathen Just finished his ninth round of chemo. We gotthe results of his latest MIBG scan and they are somuch better than before! We were told that the spotson his femurs, spine,hips and jaw did not light upthia time, meaning that they may have resolved fromthe last round of chemo.We still have a spot on hisskull that we are praying this last round(9th round)will clear up. Nathen has been alot sicker from thisround than he has been in a while. We found out 10days ago he also has a digestive track bug calledC-diff which is very contagious. They think he got itfrom being on all of the antibiotics which kills offall the good bacteria that fight off the bad bacteria.We have been on isolation so that he does not passthis on to anyone else. Due to his tummy problems weare unable to treat it the usual way with oral flagyl.We tried but since nothing goes through his tummy themedication was unable to reach where it needed to goso now we are on the IV form of it. We were supposedto be inpatient for this last week for all of ourchemo but every day I would pack up the stroller witha weeks worth of stuff for Nathen and I and sit thereat the hospital for them to wait til around 4pm totell us that they did not have any beds for us so wewould have to go home and come back first thing in themorning for chemo again. We ended up going in all 5days for the chemo even Saturday and Sunday and thencoming home. We finished the last dose on Monday sonow we are just waiting for his counts to drop and thefevers to start. In spite of all the stomachetroubles, Nathen looks and acts soooo much better thanhe was while we were in OKlahoma. Things have beenvery crazy around here this past week or so.. I havebeen very down about my two older kids not being herewith us and in the past week there have been twokiddos earn their wings one of which we had a closebond with, we shared a room with her for about a weekin the hospital and had gotten close to her and herfamily over the teo weeks prior to our sharing a room.I am here to say that she was such a sweet heart andit tears me up knowing such a sweet little princess isno longer with us. I know she is in a better place butI still hurt for her and for her family. I ask nowthat you not only pray for us, but please PRAY andPRAY some more for all of the families going down thissame road as we are. Thank you to everyone foreverything you have done for us, I cant even tell youhow greatful we are. I know that all the support,prayers, and kind words have helped us this far. Ireally do feel that God is listening and he isanswering your prayers and ours for our son. We loveyou all... Amanda