Wed February 27, 2008

I am sorry it has been so long since my last update.We have had alot of things going on here in thehospital. On Friday the 22nd we got out of he ICU unitat New York Presbitbiterian and came over to MemorialSloan Kettering to the Pediatric Observation Unit. Wecontinued doing chest therapy to help get some of thefluid off of Nathens lung. Monday morning they tookanother Xray and told us that his lung looked a wholelot better but he still had fluid behind his heart. Wegot to move over to the general floor and have beenhere every since. The rooms are shared rooms with twopatients but we got lucky and have great room mates.Dad left on Saturday so its just Nathen and I again.Its made it very hard to leave and get things that weneed. I have to wait til he is in a deep sleep andhope he stays asleep while I run to where I need to goand get back. We have had some new issues come up aswell. We were supposed to start our next round ofchemo on Tuesday but I asked the doctors to hold offbecause we are having issues with the vomiting again.Nathen had a fundo(fundoplication) done there for heis not able to actually throw up anything, he justheaves and tries to get stuff up. I have asked if wecan do some test to try to figure out why he isvomiting or at least trying to, before we add anythingnew to the mix. The docs here agreed and we are goingto do some test today and hopefully get some answers.His chemo should hopefully start Monday which will behis eigth round. The docs want to wait til thebegining of the week so the five days of chemo willend at the end of the week and not in the middle. Weare now experiencing diarhea as well and may have tochange rooms until tehy can find out if it iscontagious. please keep praying and I will try to keepeveryone informed as much as possible. Amanda