Wednesday Oct 24, 2007

Wednesday Oct 24, 2007

Well another post with some not so great news.. Over the past couple of days Nathens has had more problems with his feeding tube. Monday Night around midnight the tube came completely out of his stomache. It was very painful for him and there were still stitches on it, which were used to keep it attched to the J-junum(lower intstine) They held him down and put it back in and said that it would be ok. Then the next morning(Tuesday) The surgery team came in and shut off his feeds and told me to not let anyone put anything through it til they could do an Xray with contrast to make sure it is in where it needed to be. Basicly he had his feeds shut off for most of the day. Then around 1 they finally took the Xrays and gave us the go ahead to turn them back on. But unfotunately they wanted to up his rate and when we did that evening he threw up about an hour later(first time in about 3 or 4 days) and out came the tube again. SO PEAT AND REPEAT.. Turned off feeds They held him down re-inserted the tube into his sore infected belly and told us not to put anything through til they did another Xray.. and then about 10pm they gave us the go ahead again and the doctor left orders to turn him up 5ml by the end of the night and I told them no way.. out of the question... not til the docs came in in the morning and I could talk to them and get a set plan in writing for everyone to understand and follow. Im not going to sit back and watch my baby suffer more than he has to for no good reason. If they cant understand he has to go up slowly then I will have to tell them to just put him back on TPN( IV nutrients) and stop the feeds that are making him throw up and get sick. I will keep you all informed on how things go over the next few days. His chemo is due Friday October 26th but his counts have to be high enough to start so time will tell.
I want to Thank My mom and My two younger brothers Brad and Bobby for taking up money to set aside for our trip to New York. I know they were not able to raise as much as they would of liked to of raised, but every bit helps and they did a great job! Thanks you guys, I LOVE YOU. I also want to thank everyone who donated money, We really appreciate your help. I hope to find out in the next couple of days about the trip to New York, as of right now I am waiting to hear from the insurance so I can coordinate the trip and plan it all out. Thanks every one so much. Please pray for his counts to recover and his next bone marrow to be clean.
Amanda