Wednesday Jan 30, 2008

Wednesday Jan 30, 20008

Over the past couple of weeks Nathen had been doingreal well, playing with his sister, brother, andcousins. Then on this past Saturday Night about 1:30amhe woke up puking(normal occurance with all of Nathenstummy troubles) while I was cleaning him up I noticedthat he was really hot. I took his temperature and itwas 102.3. I called the doc on call and they said totake him to the emergency room. We got there and theyfinally got us back to a room and they took his tempagain and it was 106.5, thats right 106.5. I wasfreaking out and crying, never havde I seen any of mykids with a temp that high.They gave him some tylenolthrough his J-Tube in his tummy and drew blood forlabs and for a blood culture. They drew blood from hisport and also they drew it from his arm to find ot ifhe had an infection in his blood, in his port orboth.well before knowing what was going on with him,as soon as his temp came down some they sent us home.106.5 is dangerous for a normal healthy kid but acancer patient to have a temp that high cant be good.Monday morning I called the oncology clinic to findout what the deal was and they said to bring him inthere to be examined. By thie time I was soaggervated. I told them that I was not going to dragNathen out into the cold again for them to tell me totake him home and give him tylenol again. The Nursesaid it could be fatal if I did not bring him in. Isaid " well why in the world did you send us homethen?" I got the answer well his counts are up andthere was no reason to keep him. I was like WHAT EVER!I am sure you can relate to how upset I am at thiswhole situation by that time. While we were there atthe clinic they drew more blood for another set ofculures. one in his arm and one from his port. Thenthe PA told me that when they told me his bone marrowwas clean that they were wrong he still had cancer inhis marrow. OK NOW I AM FURIOUS over Nathens care heis receiving. Then I asked to have a black and whitecopy of the results to put with my recrds. Well ittook her almost an hour to print out a single piece ofpaper and come back into the room. When she came backshe said we were going to be admitted into thehospital and that His blood cultures had grown a staphbacteria in his blood stream from both his port andhis arm stick. They said that the bacteria is a normalbacteria that grows on your skin and he got it fromhimself, however it is supposed to stay on he skin andnot get into the blood. And when it gets into theblood it is very hard to get rid of especially in theport because the bacteria gets in the plastic and itis nearly impossible to get out. they said they willgive the antibiotics 48 hours and if it comes backthat it is still growing in his port that they willhave to take him to surgery and take the port out andplace a pic line til the infection is cleared up andthen go from there about placing a more permanent typeof line. Well today Wednesday, they came in and toldme that they will be taking Nathen into Surgery toremove the port tomorrow and place the pic line. Weare hoping and praying that all of this mess does notpostpone all of Nathens test and and his surgery onFeb 14th. Please everyone keep Nathen and my family inyour prayers. If anyone knows of a cheap place to livein the upper manhattan area in New York I wouldappreciate any info on it. Thank you to everyone foreverything that you have done and are doing for us inthis trying time. It is very very much appreciated.