Thursday Jan 24, 2008

Thursday Jan 24, 2008

We are currently on our way back from our visit to New York to see the doctors at Sloan Kettering. As soon as we got to New York City Chris and I were both ready to turn around and go back home. If you have ever been to New York, you will understand when I say THAT PLACE IS CRAZY! I told Chirs, Were not in Kansas anymore Toto. It is a very busy place with lots of people. And the rudeness of people on the streets, OMG! One thing I will say the doctors were great and I knew right away that this was where Nathen needed to be. I felt like any chance that Nathen will have to beat this horrible disease he would have it here with the best of the best. When we got into the room there was a room full of people with great attitudes and very friendly. Basicly the whole"team" was in the room with us. They were very upfront and informing completely opposite to what we have experienced with the hospital that Nathen has been being treated at now. After talking to the doctors they said they would look into Nathen's records and test more and call us back that afternoon. Sure enough a couple of hours later my phone rang and it was Dr Laquaglia himself, not a nurse, not a secratery, but the man himself to discuss his plan. He asked if we could return to New York early next week to start testing of Nathens tummy and harvesting of Nathen's Stem cells before surgery. He says we need to do testing to figure out the reason that Nathen is puking so much( thats what we have been saying for months now, thank you very much, but no one would listen) then On February 14th, Valentines day We will take Nathen's Tumor out of his tummy and see if we can save his kidney. He says we may not be able to save his left kidney but he seems very confident that he can remove all of the tumor. The way Chris and see it, he can live with one kidney, but not with this intruder in his little body. Before we left Nathen gave the docs a high five, as if he knew they were going to help him. We have had a long trip and both Chris and I are worn out. And Nathen, he has been a trooper through it all. I will post some pics as soon as I can get a chance to upload them. Please continue to keep Nathen and our family in your prayers and pray to God to guide the surgeons hand in removing our little mans tumor.
Amanda