Monday Oct 15, 2007

Monday Oct 15, 2007

NEW UPDATE ON NATERS 10/15
I want to appologize to everyone for not posting in so long, We have been having a rocky time over the past month.Last I posted Nathen was about to start his third round of chemo and he was doing fairly well. He had gotten to where he had taken a few steps here and there for mommy and daddy and when his sissy and bubba (Nicole and Zach) came to visit him he walked all the way from the family area to our room. He also was licking on foods and chewing the flavor out and spitting it back out. Then we started his third round of chemo which was 5 days long and he got sick all over again. he stopped walking stopped showing interest in food and also started running fevers again. After his counts came back up and the fevers stopped we got to come home for a few days. We came home on 9/27 which was a Thursday. Thursday night Nathen would not stay put, did not want to be inside.. he wanted to go go go, so I bundled him up and we went. We drove around for a while and around midnight we went to grandmas house and visited with grandma and grandpa, even though it was late they were both excited to see Nathen up and feeling so much better. After about 2 hours at grandmas house Nathen was pointing at the door again and was ready to go go go again. So we went, and we drove some more. When we got home we sat in dads recliner til about 4am when he finally passed out.On friday I mentioned to dad that I wanted for us to take Nathen down to Lawton to visit his family and to get nathen OUT while he can. dad and I both agreed that, going down would be a great idea as long as everyone knew that if they had been sick or have been around someone that has been sick to not come visit for Nathens sake. I called Aunt Kathy and told her what we wanted to do and I could hear in her voice that she was excited about us coming down with Nathen. Friday night Nathen once again wanted to go go go.. so I once again drove drove drove..We drove around for a bit then stopped by grandmas again but Nathen started to point at the door again wanting to go.. so we drove around for a while more and then I decided to go to walmart and walk around with him to save on gas and maybe get him to pick some food out that he would want to eat. Dad called us around 3:30 to make sure we were ok and to see how come we were not home yet.. told him that when I asked Nathen if he wanted to go home he shook his head no. After walmart we went home and Nathen finally passed out about 4:30am. On Saturday we went to see everyone in Lawton , when we got to Aunt Kathy's house she came out to greet us and Nathen was excited and smiling but as soon as she opened the door to get him out he started crying and realized we were not going bye bye anymore.. We went inside and Nathen was not happy with anything.. I took him back into little Roberts room to try to get him in playing and he was shaking his head no.. then Robert started playing peek a boo with him and he started to smile... Then Robert started beating his toys up and Nathen was belly laughing at him.
We came home around 6pm on Saturday and that night Nathen actually wanted to go to bed with mommy and daddy instead of sleeping in the recliner (wheew). The recliner is comfortable but Nathen has had tubes coming out of him and I was affraid of pulling out the tube or hurting him so needless to say I sleep very uncomfortable in the recliner. Sunday we cooked dinner and Nathen sat at teh table with us and tried to eat with us, he was very interested in dinner which was a great sign. After dinner we loaded up to go back to the hospital to get all his pre op stuff taken care for surgery Monday morning. Nathen screamed for like 3 hours straight wanting to leave and not be here at the hospital. Finally the doctor caved in and gave him something to help relax him but it wore off after an hour and then he started again. I called Chris and he came back up here and we walked around with Nathen til he fell asleep. I was sooo glad that dad came back to help us. I was a mess watching my little man cry and not be able to help him and calm him down. Monday Morning 10/1 he had his surgery and when he came out of surgery he was in the recovery room when dad and I came in he was crying mamma mamma. I went over and grabbed him and calmed him down the best I could. Then I handed him to dad to hold so I could go prepare his bed and room for him since we had moved to a new room while he was in surgery. The next day they started his feeds through his J-tube and the doctor wanted him up to 35ml an hour by that night, which is not alot but when you have not processed anything through your digestive track in over three months it is alot. By that night when they got him up to the 35 ml he was puking and puking and had diarhea. I tried to tell the doc the next morning that it was too much too fast but she ignored me and told them she wanted him up to 45 ml by that night.. Well for the next several days Nathen was as sick as can be and was throwing up and pooping on average 12-15 time per day of each. I was at my wits ends with these doctors not listening to me and me watching my baby be so sick knowing that it could be stopped if they would listen.We started his forth round of chemo on Friday the 5th which did not help matters any. Finally The GI doc came up and asked me about what was going on and she said I was right it was too much too fast and they had to stop. She told them to stop the feeds and give his gut a break and do the TPN( IV form of nutrition) for a few days and then we would slowly start him back on the feeds. Well as soon as they stopped the feeds he quit throwing up and quit the diarhea.. IMAGINE THAT.. Just like I had tried to tell them it was the feeds making him sick, so basicly he was getting sick over and over for almost a whole week for nothing... Then on Friday they started his feeds back at 10ml an hour and he started gting sick again.. no where near as much but he was getting sick so on Sunday the GI doc came in and told them to stop the feeds again and we would do some test when his counts come up again. So for now he is neutropoenic and is running fevers again... last night Sunday the 14th is when he started the fevers and it got up to 103.7 so now that he is not sick from the feeds he is sick from the chemo. Keep praying for him and praying for us to make it to New York where the doctors are that specialize in his kind of cancer. In the mean time I am getting with everyone I know to try to figure out a way to get money raised to help us get there and set up living arrangements for Him and I. If anyone is interested in helping us out with finances they can contact my mom or myself through nathens email address or my email address. Amanda.camp@yahoo.com or Nathen's email nathentrueblood@verizon.net. Thank you to everyone for your support in this very trying time that Myself, Nathen and our family are going through.
Amanda