Monday Jan 7, 2008

Monday Jan 7th, 2008

Well we started our sixth and seventh round of Chemosince my last post. Nathen had gotten a bad infectionin hs blood during his 6th round and had to be onantibiotics for 14 days. His counts surprisinglyrecovered alot faster than all of the other rounds. Hestayed bottomed out for only a few days instead ofalmost two weeks. We finished our 7th round on the31st of December and we are still battling getting hiscounts to recover. in the meantime, he has had alot ofother problems start up. He has began to have alot offluid retention and has gotten very swollen all over.He now has to wear 4t PJs due to how round his bodyis. Over the past week he has started having adificult time breathing. The docs say he sounds clear.He just seems like it hurts to take a breath. He alsostatred moaning alot the same time the breathingproblem started. He is now on Morphine every fourhours and they upped his dose today to help ease hisuncomfortableness. They can not give me a reason whyhe is having so many problems which is very nerveracking for me. Today we had an echocardiogram done onhis heart( sometimes if you have a problem with yourheart you will retain fluid). I hope to find out theresults of that tomorrow morning. Kinda worried aboutthat, hoping and praying all will be ok, but at thesame time wanting an answer why my baby is having suchpain and breathing problems as well as retainingfluid. I talked to Slaon Kettering today and we have ascheduled date for Nathens consultation and secondopinion set for January 22nd. I am hoping that betweennow and then we can some how raise if not all thenmost the money needed for his surgery. Maybe thedoctors there will let me pay most and make paymentson the rest. Please everyone keep praying for mylittle man and pray for our family to stay strongthrough this trying time. Amanda