Friday Feb 8, 2008

Friday Feb 8, 20008

On Wed. the 6th Nathen and I flew from Oklahoma to New York. Our plane was supposed to leave around 7am and well... we got to the airport with 20 minutes til time to take off. We missed that flight and settled for the next flight which had one stop with a two hour lay over and it did not leave til around 11:30. GREAT, right? After waiting around all morning for our flight when it was time to go it took Chris and I almost 10 minutes to get throuhg the security gate because of all of our stuff and the security procedures.. I was thinking OMG I hope we dont miss this one. When we got to the gate they said oh that flight was delayed by about an hour and a half and they just forgot to update the computers... wheeww thank goodness. I did not want to wait around for another flight again. The two hour lay over became a lay over less than an hour by time we got there. It was such a mess. I had Nathens stroller, his car seat, his cooler with his medicines and two carry ons. I had bought a little flimsy dolly at the airport to help get the carseat from one plane to another but that was almost a bigger pain then if I had not used one. the base of it was not deep enough for the car seat to fit on correctly so everytime I would hit a bump the whole thing would tip over and I would have to stop and re-strap it down. Then we get to Newark, NJ and have to take a taxi to the Ronald Mcdonald house... he must have taken me the scenic route because it was a longer drive than it took Chris and I and he charged me out the butt for it. I was like HOW MUCH? Finally got upstairs and got settled in but unfortunately Nathen Slept all day through our trip so he was up til like midnight and then I was unable to fall asleep, just too much on my mind. I finally fell out about 2am. Got back up at 530am to get to the dr's in time for his 7am appointment. His appointment went great and the testing went smoothly. Took about an hour and a half for the test and I ended up fallin asleep in the waiting room waiting for Nathen to come out. Then this morning We came back at 8am another test. It was so miserable for me, they had to put a feeding tube down his nose to get the die into his tummy for the test. I was balling my eyes out, Nathen was screaming mamma mamma mamma, It broke my heart that I could not just say ok forget it Nathen lets go! I knew that it had to be done so we could find out what was going on with his tummy. When they did the test Nathen had to hold completely still so I had to hold his arms while they were putting the dye in and could not let him move. He would puke and look at me and cry and they would pump more in. I could not keep my eyes open I was crying so hard. My poor baby has been through so much, I would give anything to take his place and hae him well again. They did tell me that he has a hernia and this is why he has been puking so much. I was releived that they found out what was going on and the test were not for nothing. I was very FRUSTRATED though that the hospital in Oklahoma could have done these test months ago and we could have had an answer and fixed it a long time ago. Instead they would tell me I dont know why he is puking but here is some more meds to help with the nausea. I even asked several times can we run some test to figure out what is going on and I kept getting NO. I am very happy that we are here now. I know this is the best place for Nathen to be. After the test this morning Nathen needed his dressing changed around his PICC line and he also has been running low grade fevers off and on so we came in to see the docs. They looked and said it was an infection in his arm just north of the place where his PICC line goes in at. They have admitted us and are going to take it out and he is going in for surgery in the morning to get a temporary central line put in, in the morning. They also said that due to this we have to reschedule his Tumor removal surgery for a later date. Not sure when yet but I will let everyone know as soon as I get information.Please keep praying.
Amanda